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Serenade
I am sitting in the basement on the computer trying desperately to ignore the cricket serenading me from some other corner of the room. My family has been asleep for hours. Silently I have struck a...
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The Storms of Life
As we prepared for Hurricane Sandy as best we could on Monday morning, we stopped by my grandparents house to tie up their barbecue and a few other things. Wind precautions. We stayed for about an...
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Superheroes…
I saw superheroes today. Not the kind that normally come to mind. The 9th floor of Memorial Sloan Kettering Cancer Center was absolutely crawling with them. None of them had capes. And they weren’t...
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Twelve Surgeries in 11 Years: Living With Cowden’s Syndrome
http://blog.silive.com/gracelyns_chronicles/2015/01/twelve_surgeries_in_11_years_l.html The content of the article is pasted below. Please click on the link above to read the story in full effect....
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Unsung Hero
There is a hero in this war on Cowden’s Syndrome, this draining task of “beatingcowdens” that we undertake each day. He doesn’t get much attention, and he prefers it that way. Yet, I shudder to think...
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Sweet Sixteen
Dear Meghan, When we started this journey I never would have chosen this path for you. I never would have selected a life of hospitalizations, tests, rare diseases and pain. I would have chosen an...
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